Social media use among patients and caregivers: a scoping review
Hamm MP, Chisholm A, Shulhan J, Milne A, Scott SD, Given LM, Hartling L
BMJ open · 158 citations
How it was studied
- Design
- Systematic review (classified by our AI screen)
- Studied in
- People
- Main outcome
- No health outcome
Who paid for it
- Funding
- Independent funding
- Government
- Canadian Institutes of Health Research
Based on 1 listed funder(s).
Publication
- Published
- 2013-01-01 · BMJ Open · vol. 3 · issue 5 · p. e002819
- Publisher
- BMJ
- Cited
- 360 citations · more than 100% of similar papers · 29.7× the field average
- Impact
- Top 10% most cited in its field
- References
- 31 works
- Access
- Open access (journal) · CC-BY-NC
- Research areas
- Social Media in Health Education · Health Literacy and Information Accessibility · Mobile Health and mHealth Applications
- Keywords
- social media, patient populations, caregivers, online health communities, forum, social networking sites, virtual worlds, self-care, effectiveness evaluation, cancer
7 authors
From CA, AU
- Michele P Hamm · correspondingUniversity of Alberta
- Annabritt ChisholmUniversity of Alberta
- Jocelyn ShulhanUniversity of Alberta
- Andrea MilneUniversity of Alberta
- Shannon D. ScottUniversity of Alberta
- Lisa M. GivenCharles Sturt University
Abstract
Objective
To map the state of the existing literature evaluating the use of social media in patient and caregiver populations.
Design
Scoping review.
Data sources
Medline, CENTRAL, ERIC, PubMed, CINAHL Plus Full Text, Academic Search Complete, Alt Health Watch, Health Source, Communication and Mass Media Complete, Web of Knowledge and ProQuest (2000-2012).
Study selection
Studies reporting primary research on the use of social media (collaborative projects, blogs/microblogs, content communities, social networking sites, virtual worlds) by patients or caregivers.
Data extraction
Two reviewers screened studies for eligibility; one reviewer extracted data from relevant studies and a second performed verification for accuracy and completeness on a 10% sample. Data were analysed to describe which social media tools are being used, by whom, for what purpose and how they are being evaluated.
Results
Two hundred eighty-four studies were included. Discussion forums were highly prevalent and constitute 66.6% of the sample. Social networking sites (14.8%) and blogs/microblogs (14.1%) were the next most commonly used tools. The intended purpose of the tool was to facilitate self-care in 77.1% of studies. While there were clusters of studies that focused on similar conditions (eg, lifestyle/weight loss (12.7%), cancer (11.3%)), there were no patterns in the objectives or tools used. A large proportion of the studies were descriptive (42.3%); however, there were also 48 (16.9%) randomised controlled trials (RCTs). Among the RCTs, 35.4% reported statistically significant results favouring the social media intervention being evaluated; however, 72.9% presented positive conclusions regarding the use of social media.
Conclusions
There is an extensive body of literature examining the use of social media in patient and caregiver populations. Much of this work is descriptive; however, with such widespread use, evaluations of effectiveness are required. In studies that have examined effectiveness, positive conclusions are often reported, despite non-significant findings.
Abstract via Europe PMC. Copyright remains with the authors or publisher (CC BY-NC).
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